痴呆症护理研究和心理社会因素
Leah Karliner1, Alana Elop1, Sherry Yam1
1University of California, San Francisco, San Francisco, CA, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 25, 2025
概括
招募非英语发言人进行痴呆症研究具有挑战,即使是以证据为基础的方法. 解决参与者和护理合作伙伴的语言需求对于包容性临床试验至关重要.
科学领域:
- 神经学 神经学
- 临床研究 临床研究
- 健康 公平 卫生 公平
背景情况:
- 痴呆症研究需要多样化的参与者群体,以获得可概括的结果.
- 由于复杂性,非英语发言者经常被排除在美国研究之外.
- 这项研究解决了非英语发言人在认知评估中的招聘和参与挑战.
研究的目的:
- 描述在临床认知评估研究中招募和吸引非英语发言者的挑战和学习.
- 确定改善纳入不同语言群体在痴呆症研究中的策略.
主要方法:
- 这项研究涉及使用基于EHR的算法进行实用随机对照试验 (eRADAR).
- 招聘人员包括讲汉语和西班牙语的人,采用基于证据的语言方法和双语顾问.
- 研究人员跟踪了招聘和访问数据,并对评论进行了定性分析,以确定主题.
主要成果:
- 首选语言和EHR文档的差异阻碍了招聘.
- 沟通障碍因听力/认知问题和依赖护理合作伙伴而加剧.
- 访问期间出现了关于语言流利,双语和评估工具选择的复杂性.
结论:
- 即使采用基于证据的方法,参与者和护理伙伴的语言需求也需要仔细关注.
- 研究人员必须预见挑战,并实施强有力的策略,包容性痴呆症研究.
- 确保公平参与对于推进痴呆症研究和所有人群的治疗至关重要.
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