患者如何为健康技术的评估做出贡献
François Houÿez1, Julien Delaye1
1European Organisation for Rare Diseases (Eurordis), 75014 Paris, France; julien.delaye@eurordis.org.
Journal of market access & health policy
|December 26, 2025
概括
患者参与医疗保健技术评估 (HTA) 从排斥演变为必要的合作. 患者的观点现在在整个HTA过程中至关重要,从早期开发到最终决策.
科学领域:
- 卫生技术评估 卫生技术评估
- 患者参与 患者参与
- 监管科学 监管科学
背景情况:
- 从历史上看,患者被排除在医疗保健系统覆盖决策之外.
- 患者参与监管过程,特别是药品,在欧洲开始在20世纪90年代初.
- 药品成本上凸显了患者参与的必要性.
研究的目的:
- 描述患者在医疗技术评估中的贡献的演变和重要性.
- 概述患者投入有价值的各个阶段.
主要方法:
- 对患者参与监管和HTA过程的历史发展进行分析.
- 确定医疗技术评估中的关键阶段,包括患者的观点.
- 评估和评估期间收集患者意见的方法的审查.
主要成果:
- 患者参与已经从排斥过渡到积极参与HTA.
- 患者和组织优先考虑基于社区利益的技术.
- 在视野扫描,科学建议和评估/评估阶段寻求患者的意见.
结论:
- 患者参与现在被认为是健康技术评估的重要组成部分.
- 纳入患者的观点可以提高医疗技术的相关性和价值.
- 持续的患者参与对于明智的医疗保健决策至关重要.
相关概念视频
Issues And Trends In Healthcare Delivery System
6.1K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
6.1K
Current Trends in Nursing II
3.3K
Trends in nursing are multifactorial and associated with changes in society, within the nursing profession, and in other professions. Notably, telehealth and remote nursing contribute to successful healthcare delivery for numerous patients and help reduce stress for nurses due to nursing shortages. Nurses can reach patients, monitor their conditions, and interact with them using computers, audio, visual accessories, and telephones—for example, remote patient monitoring systems. Likewise,...
3.3K
Health Information Technology and Healthcare Information System
3.2K
Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
3.2K
Nursing Assessment
9.0K
The two sources for collecting information are primary and secondary. After gathering information, interpretation and validation help to complete the data. The purpose of assessment is to establish data with the initial information, to interpret data about the patient's perceived needs and health problems, and to respond to these problems identified.
The nurse collects all aspects of the patient's health in the initial assessment, establishing priorities for ongoing focused assessments...
The nurse collects all aspects of the patient's health in the initial assessment, establishing priorities for ongoing focused assessments...
9.0K
Data Collection III
3.9K
The physical assessment examines the patient for objective data that defines the patient's condition, and aids in formulating the nursing care plan. The purpose of physical assessment is a health status appraisal, which includes identifying health problems, and establishing a database for nursing intervention.
The principles to begin the physical assessment include conducting a comprehensive or problem-related history in a quiet, well-lit room, emphasizing privacy and comfort for the...
The principles to begin the physical assessment include conducting a comprehensive or problem-related history in a quiet, well-lit room, emphasizing privacy and comfort for the...
3.9K
Data Collection I
7.7K
Data collection gathers information needed to make accurate judgments about a patient's present condition. During a health history interview, subjective data is collected from the patient, their caregivers, or family members, and objective data is collected through observations and physical assessment. Patients are the primary source of subjective data. Thus information gathered from patients through interviews, observations, and physical examination is primary data. Secondary sources of...
7.7K


