痴呆症护理研究和心理社会因素
Stephani Shivers1, Olivia Cohen1, Anne Kenny1
1CaringKind, New York, NY, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 26, 2025
概括
痴呆症患者 (PLWD) 通过表演分享了他们的经验,减少了耻辱和改善了态度. 这些节目对观众的看法和未来与PLWD的互动产生了积极的影响.
科学领域:
- 老年学是一门学科.
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 围绕痴呆症的耻辱严重影响患者的护理,诊断和服务的可访问性.
- 痴呆症患者可以通过分享个人经验和反来积极打击耻辱.
- 社区组织在制定创新方案以解决与痴呆相关的耻辱问题方面发挥着至关重要的作用.
研究的目的:
- 评估基于绩效的节目在改变观众对PLWD的态度和行为的有效性.
- 通过被诊断患有痴呆症的个人的生活经验,减少与痴呆症相关的耻辱感.
- 改善医疗保健专业人员的理解和未来与PLWD及其家人的互动.
主要方法:
- 使用PLWD创建的脚本实现了两个不同的程序",To Whom I May Concern®" (TWIMC) 和"痴呆法案II" (DA2).
- 表演包括PLWD分享他们的经验,随后是观众问答会.
- 表演前后的调查测量了观众的看法,使用描述性词和反思性问题来测量与PLWD的互动.
主要成果:
- 观众描述从消极的术语 (例如",悲伤"",困惑") 转向积极的术语 (例如",希望"",勇敢"",有弹性").
- 观察到DA2受众愿意直接与PLWD (78%至95%) 交谈,并让他们参与同行支持 (47%至95%) 的意愿显著增加.
- 表演后,考虑到家庭/朋友护理人员支持需求,DA2观众的显著增加 (51%至94%).
结论:
- 一小时的表演,以PLWD的实践经验为特色,可以有效地改善观众的态度,并减少与痴呆相关的耻辱.
- 参与PLWD叙述增强了医疗保健专业人员与痴呆症受影响的个人和家庭互动和计划护理的能力.
- 这个程序模型提供了一个可扩展和有影响力的方法来培养痴呆症护理环境中的同情心和理解.
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