痴呆症护理研究和心理社会因素
Lena Simon1, Abigail Stephan1, Angie L Sardina1
1Clemson University, Institute for Engaged Aging, Seneca, SC, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 26, 2025
概括
焦点小组有效地促进了黑人/非洲裔美国人南卡罗来纳州人之间的阿尔茨海默病和相关痴呆症 (ADRD) 讨论. 调查结果强调了家庭照顾者的角色,保险挑战和耻辱感,这表明了家庭支持的更广泛的定义.
科学领域:
- 老年学是指老年学的学科.
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 阿尔茨海默病和相关痴呆症 (ADRD) 的患病率在南卡罗来纳州正在上升,需要有针对性的健康研究.
- ADRD不成比例地影响家庭,特别是像黑人/非洲裔美国人这样的少数群体,他们拥有文化资本,但可能面临资源限制.
- 少数群体中ADRD决策中的多代家庭动态仍未得到充分研究.
研究的目的:
- 调查有关阿尔茨海默病和相关痴呆症 (ADRD) 讨论和决策的家庭信仰和期望.
- 在南卡罗来纳州的背景下,探索影响家庭如何处理与ADRD相关的对话和护理计划的因素.
主要方法:
- 采用混合方法的方法,强调质量.
- 参与者 (N=40,主要是黑人/非洲裔美国女性) 参与了与家人/虚构亲属的方便焦点小组.
- 关于ADRD知识和感知的定量数据通过在线调查在三个时间点收集.
主要成果:
- 85%的参与者预计焦点小组将有利于他们的家庭; 77.1%的人可能会讨论ADRD.
- 出现的关键主题是:单亲家庭成员被指定为照顾者,中产阶级在医疗保险方面的斗争,以及围绕ADRD护理需求的耻辱.
- "家庭"的概念在ADRD讨论和支持网络中超越了生物联系.
结论:
- 焦点小组是提高中年和老年南卡罗来纳州黑人/非洲裔美国人的ADRD知识和意识的可行方法.
- 这种方法有效地收集了对以家庭为中心的ADRD对话和决策过程的见解.
- 调查结果强调了在少数群体的ADRD护理计划中考虑扩大家庭和社区网络的重要性.
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