探索印尼南苏拉威西的麻风感知:关于知识,态度,做法和耻辱的混合方法研究
Ralalicia Limato1, Ida A Sutrisni1, Rahmat Sagara1
1Oxford University Clinical Research Unit Indonesia, Faculty of Medicine, Universitas Indonesia, Jakarta, Indonesia.
PLOS global public health
|December 26, 2025
概括
印尼社区对麻风的了解很低,这导致了关于传播的重大耻辱和误解. 解决这一问题需要文化敏感的干预措施和政治支持,以减少社会排斥.
科学领域:
- 公共卫生 公共卫生
- 社会科学 社会科学 社会科学
- 传染病流行病学 传染病流行病学
背景情况:
- 与麻风相关的耻辱严重影响个人和社区,影响治疗坚持和生活质量.
- 了解社区的知识和看法对于制定有效的耻辱减少策略至关重要.
研究的目的:
- 在MetLep试验的背景下,探索印度尼西亚苏拉威西岛的特有社区对麻风的知识和看法.
- 评估与麻风相关的社区和机构耻辱的程度.
主要方法:
- 这是一项混合方法的横截面研究,结合了定量方法 (NLR感知工具包,EMIC社区污名度量,社会距离度量) 和定性方法 (半结构面试,焦点小组讨论) 的方法.
- 收集了402名参与者的数据,包括受麻风影响的个人,密切接触者,社区成员和医疗保健工作者.
主要成果:
- 关于麻风症状,原因和传播的知识得分平均低,普遍存在误解 (例如,遗传性,动物便,性接触).
- 发现了严重的社区和机构污名,当地术语"kandala"带有负面的社会文化内涵.
- 定性数据揭示了复杂的,特定于背景的耻辱,寻求护理障碍和社会排斥的经历.
结论:
- 在麻风知识和高水平的耻辱的实质性差距需要有针对性的,具体的背景教育和公共卫生干预措施.
- 解决麻风病的耻辱需要持续的政治承诺,充足的资金和对耻辱敏感的方法,以改善医疗保健准入和减少社会排斥.
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