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范围审查:了解脑瘤患者的决策需求和偏好

Iris J M Bras^1,2, Petra Hoogendoorn³, Margriet M Sitskoorn²

¹Department of Neurosurgery, Elisabeth-TweeSteden Hospital, Hilvarenbeekse Weg 60, 5022 GC Tilburg, the Netherlands.

Neuro-oncology practice

|December 29, 2025

概括

脑瘤 (PwBT) 患者希望在决策中发挥积极的作用,优先考虑生活质量和生存. 共享决策 (SDM) 可以满足他们的需求,但需要更好地整合患者的偏好.

科学领域:

神经瘤学神经瘤学
健康心理学心理健康心理学
决策科学决策科学决策科学

背景情况:

有信息的医疗保健决策需要了解患者的需求和偏好.
解决这些需求可以提高患者的决策体验和质量.
脑瘤患者 (PwBT) 在整个疾病轨迹中都有特定的决策需求.

研究的目的:

审查有关脑瘤 (瘤,脑膜瘤,脑转移) 患者的决策需求和偏好研究.
评估关于PwBT的决策辅助和干预措施的调查结果.
发现有关PwBT决策过程的研究缺口.

主要方法:

使用Arksey和O'Malley的方法框架进行范围审查.
在PubMed进行了系统的文献搜索.
包括详细介绍患者决策需求,偏好和决策辅助的研究.

主要成果:

20项研究研究了PwBT的决策需求和偏好,6项研究重点关注决策辅助工具.
大多数PwBT更喜欢合作或积极的决策角色.
关键的患者价值观包括生活质量 (QoL),功能独立和生存; 量身定制的信息和支持至关重要.

结论:

共享决策 (SDM) 显示了解决PwBT需求和偏好的潜力.
质量和功能独立是PwBT的关键,但研究不足的决策因素.
需要进一步的研究来将患者的结果偏好纳入SDM并评估决策支持工具.

关键词:

大脑瘤患者的大脑瘤患者决策辅助工具是什么意思决策需要决策的需要.决定性的偏好.范围审查审查的范围审查.

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