非手术治疗直肠癌:对患者的看法,优先事项,障碍和监视促进者的定性研究
Bailey K Hilty Chu1, Totadri Dhimal1, Megan E Boyer1
1Surgical Health Outcomes and Research Enterprise (SHORE), Department of Surgery, University of Rochester, Rochester, New York.
接受直肠癌非手术治疗的患者往往有积极的经验,但由于情绪负担和后勤需求,他们面临监视的重大障碍. 为了有效的长期护理,需要改进支持系统.
科学领域:
- 在瘤学瘤学.
- 患者体验研究 研究研究
- 医疗保健服务研究 医疗服务研究
背景情况:
- 在新辅助疗法后,非手术治疗 (NOM) 越来越多地用于直肠癌,提供器官保存.
- 由于局部再生的风险,NOM需要密集监测.
- 在NOM中,患者的体验和监测障碍尚未得到充分理解.
研究的目的:
- 探索患者的感知,优先事项和护理障碍/促进者在NOM期间的直肠癌.
- 了解患者在全新辅助疗法 (TNT) 和NOM后的旅程.
主要方法:
- 使用半结构面试进行的定性描述性研究.
- 从15名接受NOM治疗的直肠癌患者采访成绩单的诱导性主题分析.
- 患者已经完成了TNT,并取得了临床完整反应.
主要成果:
- 大多数患者报告了积极的体验,受提供者关系和社会支持的影响.
- 监控的障碍包括情绪负担,社会和后勤挑战.
- 在5名患者中发生了局部再生,4名患者经历了远程转移.
结论:
- 提供者关系和社会支持是NOM的关键推动者.
- 情感和后勤需求显著阻碍了监控的遵守.
- 需要系统层面的干预来支持接受直肠癌NOM治疗的患者.
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