通过移动健康应用程序追踪慢性疾病:哪些用户体验方面是关键?
Anouk S Huberts1, Preston Long2, Ann-Kristin Porth3
1Department of Quality and Patientcare, Erasmus University Medical Center, 3015 GD Rotterdam, The Netherlands.
Healthcare (Basel, Switzerland)
|December 30, 2025
概括
针对患者报告结果 (PROs) 的统一而可定制的数字平台可以改善欧洲各种慢性疾病的参与度和数据质量. 关键的用户体验 (UX) 因素包括个性化,数据共享和隐私.
科学领域:
- 数字健康数字健康
- 患者的治疗结果.
- 用户体验研究 用户体验研究
背景情况:
- 对用户体验 (UX) 因素的有限理解阻碍了患者与数字患者报告结果 (PROs) 工具的持续参与.
- 现有的研究往往是疾病或国家特定的,造成分裂和增加欧洲数字健康框架的开发成本.
- 这项研究通过确定可扩展,跨疾病的PRO收集的共享用户体验决定因素来解决这一差距.
研究的目的:
- 识别和分析支持采用和持续使用PRO收集工具的关键用户体验因素.
- 为欧洲数字健康框架的发展提供信息,用于慢性疾病管理.
主要方法:
- 在六个欧洲国家与四个慢性疾病领域 (癌症,IBD,糖尿病) 的患者进行了重点小组.
- 通过国家患者咨询委员会进行有目的抽样,确保了参与者的多样性.
- 经过修改的主题分析,以UX蜂模型和诱导主题为指导,确定了跨疾病的UX决定因素.
主要成果:
- 六个核心用户体验因素出现了:技术兼容性,护理团队沟通,个性化,数据共享,教育材料和数据保护.
- 可定制性至关重要,确定了特定疾病的需求 (例如,T1D的葡萄糖监测,IBD的爆发检测,癌症的副作用比较).
- 共同的需求表明,统一的应用程序是可取的,这可能会为患有并发症的患者提供自我管理.
结论:
- 一个统一而又可定制的PRO平台可以在各种慢性疾病中提高患者参与度和数据质量.
- 诸如无数据传输,个性化,反和强大的隐私措施等功能促进了信任和长期采用.
- 定制是必不可少的,以满足个体患者和疾病特定的需求,以实现最佳的工具利用.
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