共同创建的青少年精神卫生保健数据治理框架:价值观,原则和实施-一个范围审查
Sebastian Rodriguez Duque1, Eran Tal1, Taite Beggs2
1Department of Philosophy, McGill University, Montreal, QC, Canada.
Digital health
|December 30, 2025
概括
青年心理健康数据治理需要改进. 与年轻人共同创造数据价值和原则对于道德,以年轻人为中心的服务和更好的数据管理至关重要.
科学领域:
- 心理健康服务研究 心理健康服务研究
- 数据治理数据治理
- 青少年数字健康 青少年数字健康
背景情况:
- 数据治理框架对于道德管理心理健康数据至关重要.
- 数字实践的发展需要反映社区价值观的治理模式.
- 了解年轻人对心理健康数据治理的看法至关重要.
研究的目的:
- 确定青年精神健康数据治理的价值观和原则.
- 寻找现有的共同创建的数据治理框架.
- 探索将青年价值观纳入当前数据治理.
主要方法:
- 在Arksey和O'Malley之后进行了一个范围审查,由Peters等人更新.
- 在Scopus,MEDLINE,Embase和APA PsycINFO数据库中进行了搜索.
- 包括从2013年到现在的研究.
主要成果:
- 只有四项研究探讨了年轻人对心理健康数据使用和共创的偏好.
- 没有研究专门关注青年数据值或综合数据治理.
- 关键主题包括隐私,信任,透明度和控制.
结论:
- 对于青少年心理健康服务的数据治理,迫切需要改进.
- 对于青年心理健康数据治理的价值观和原则的合作开发是必不可少的.
- 以青年为中心的方法必须优先考虑共同创建的治理框架.
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