在移植过程中描述患者和护理人员的经验和教育需求
Michelle Ruhl1, Ashley Burghall2, Brianna Groot2
1Division of Pediatric Nephrology, Department of Pediatrics, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.
Canadian journal of kidney health and disease
|December 31, 2025
概括
儿童移植接受者及其照顾者需要个性化的教育和持续的支持. 量身定制的教育资源可以改善移植体验,并澄清对更好的护理的期望.
科学领域:
- 儿科脏病学 儿科脏病学
- 移植手术 移植手术
- 患者护理 患者护理
背景情况:
- 腎移植是兒童腎臟病的重要治療方法.
- 导航移植过程对患者和家人来说带来了重大挑战.
研究的目的:
- 探索儿科移植接受者的生活经历.
- 确定这些患者及其护理人员的教育需求.
主要方法:
- 一项涉及半结构面试的定性描述性研究.
- 数据分析使用了带有诱导方法的定性内容分析.
- 采访通过视频或电话与23名参与者 (10名患者,13名护理人员) 进行.
主要成果:
- 关键主题包括移植对个人 (社会,心理,身体,生活方式) 的影响,移植期望与现实对比,以及需要全面支持.
- 参与者强调了需要个性化,适合年龄的教育在可访问的格式.
- 突出了对患者和护理人员及时加强和情绪支持的需要.
结论:
- 有效的准备和教育显著影响了移植过程.
- 开发量身定制的教育资源对于加强患者和护理人员的支持和澄清期望至关重要.
- 这项研究的见解可以为儿童移植护理提供改进的教育材料.
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