在数字知情同意程序中的ASL同意
Ben S Kosa1, Ai Minakawa2, Patrick Boudreault2
1University of Washington.
概括
聋人因沟通障碍而面临健康差异. 一个新的应用程序在美国手语 (ASL) 中提供知情同意,使研究对聋人社区更容易获得和公平.
科学领域:
- 健康 公平 卫生 公平
- 医疗信息学 医疗信息学
- 手语研究手语研究
背景情况:
- 与普通人群相比,聋人个人经历了严重的健康差异和不平等.
- 障碍包括缺乏ASL材料和在以聋人为中心的护理中接受培训的医疗保健专业人员.
- 对信息的获取有限,阻碍了参与临床研究.
研究的目的:
- 解决聋人个人知情同意过程中的语言障碍.
- 开发和评估美国手语 (ASL) 的知情同意应用程序.
主要方法:
- 利用机器学习创建基于ASL的导航和签名方法,以获得知情同意.
- 为ASL知情同意程序开发了一个可访问的应用程序.
主要成果:
- 这项研究开发了一种名为"ASL同意"的新方法.
- 大学受过教育的聋人参与者发现ASL同意应用程序与传统的英语同意相比较.
结论:
- 一个ASL知情同意应用程序可以弥合医疗保健和研究中的沟通差距.
- 这项技术促进了聋人社区在临床研究参与中的更大的包容性和公平性.
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