数字健康公平的共同创建原则:对加泰罗尼亚参与式以人为中心的设计进行跨部门的定性研究
Jordi Piera-Jiménez1,2, Núria Vilarasau Creus3, Ada Maymó Costa3
1Digitalization for the Sustainability of the Healthcare System (DS3) research group, Barcelona, Spain.
Journal of medical Internet research
|January 6, 2026
概括
这项研究开发了10个设计原则,通过涉及各种利益相关者来实现公平的数字健康转型. 这些原则旨在创建包容性,以人为中心的健康信息系统,解决数字素养和用户排斥等障碍.
科学领域:
- 数字健康数字健康
- 健康 公平 卫生 公平
- 以人为中心的设计
背景情况:
- 如果在没有最终用户投入的情况下设计,数字健康技术可能会加剧健康不平等.
- COVID-19大流行凸显了技术在弥合和扩大医疗保健准入差距方面的双重作用.
- 将公平纳入数字卫生转型对于卫生系统至关重要.
研究的目的:
- 为公平的数字健康转型共同创建可操作的设计原则.
- 为以人为中心,综合和纵向的信息系统制定指导方针.
- 让各种各样的利益相关者参与参与式以人为中心的设计 (PHCD) 过程.
主要方法:
- 一项质量PHCD研究,包括来自加泰罗尼亚医疗保健生态系统的265名参与者.
- 在24个区域和7个专家会议中利用设计思维和共同创作工具.
- 采用视觉工具和感应-演分析来生成设计原则.
主要成果:
- 确定了障碍:数字素养差距,分散的系统,缺乏用户参与,以及对弱势群体的关注不足.
- 为公平的数字健康创造了10个核心原则,优先考虑人,通用接入,同情护理和数据集成.
- 原则强调用户体验,数据实用性,建立信任和协作创新.
结论:
- 大规模的PHCD有效地解决了健康信息系统中的公平障碍.
- 让各种各样的利益相关者参与,将复杂的不平等转化为实际的指导.
- 这些原则为以人为中心的强大,包容性和可访问的数字健康系统提供了框架.
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