种族,种族和血友病:一个广泛的审查
Stacey A Fedewa1,2, Almeera Lateef3, Anastasia Kolousek3
1Department of Hematology and Medical Oncology, Emory University School of Medicine, Atlanta, GA, USA. sfedewa@emory.edu.
Journal of racial and ethnic health disparities
|January 6, 2026
概括
这份综述强调了血友病护理中的种族和民族差异,并指出黑人和西班牙裔个体与白人个体相比,具有更高的抑制剂风险和更差的身体结果. 需要更多的全球研究来解决这些不平等问题.
科学领域:
- 血液学 血液学 血液学
- 公共卫生 公共卫生
- 健康差异 在健康上的差异
背景情况:
- 患有血友病的人群在种族和种族上越来越多样化.
- 缺乏对种族,种族和血友病护理的全面审查.
- 了解这些差异对于公平的医疗保健服务至关重要.
研究的目的:
- 在整个血友病护理连续过程中对种族和种族进行范围审查.
- 确定研究缺口,并为未来关于不同血友病患者群体的研究提供信息.
- 突出血友病诊断,治疗和结果现有的差异.
主要方法:
- 在PubMed,Embase和Medline搜索了从1970年到2024年的文章.
- 使用的关键词:血友病,种族,种族和特定的种族/种族群体.
- 包括报告种族/种族特定结果的研究;不包括案例报告,评论,评论和摘要.
主要成果:
- 包括38项研究,大多数是在美国进行的.
- 与白人相比,黑人和西班牙裔个体观察到更高的抑制剂风险.
- 黑人个体体验到更糟糕的身体功能;治疗坚持和死亡率的发现是混合的.
- 白人男性的血友病患病率略高于治疗中心的黑人或西班牙裔男性.
结论:
- 黑人和西班牙裔血友病患者的抑制剂风险和身体结果存在明显的差异.
- 对于血友病的护理和结果,发现的研究较少,结果也较不一致.
- 大多数研究都是基于美国的,限制了全球适用性;需要进一步的全球研究.
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