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扩大参与者反超越临床研究:一个模块化系统,旨在连接研究人员和参与者

Alicia Giordimaina Carmichael¹, Donna Walter¹, Brandon Patric Labbree¹

¹Institute for Social Research, University of Michigan, Ann Arbor, MI, USA.

Journal of clinical and translational science

|January 7, 2026

概括

参与者反系统 (PFS) 可以提高参与非临床研究的参与度. 与会者和工作人员的焦点小组揭示了对匿名网络调查的偏好,并突出了反交付中的设计紧张关系.

科学领域:

人类受试者研究方法研究方法.
参与者参与策略参与者参与策略
定性研究设计定性研究设计.

背景情况:

参与者参与度下降对人类受试者研究构成重大挑战.
参与者反系统 (PFS) 通过赋予参与者权力并告知研究人员,提供了一个潜在的解决方案.
目前的PFS设计主要侧重于临床研究环境.

研究的目的:

探索将参与者反系统 (PFS) 扩展到非临床研究的设计参数.
确定在各种非临床研究环境中实施PFS的关键考虑因素.

主要方法:

进行了五个重点小组与经验丰富的研究参与者 (n=25) 跨越各种亲和群体.
与来自不同大学单位的研究小组成员 (n=26) 进行了五个重点小组.
分析了焦点小组的成绩单,使用诱导性主题分析来确定关键的设计考虑因素.

主要成果:

确定了三个核心的PFS设计考虑因素:反动机,收集和交付.
经验丰富的研究参与者和研究小组成员都喜欢匿名的基于网络的调查,涵盖沟通,尊重,价值,负担和安全.
反交付中的关键紧张因素包括平衡标准化与研究特定需求,并使领导总结与前线人员要求保持一致.

结论:

将PFS扩展到非临床研究需要平衡集中标准化与研究特定的灵活性.
建议采用混合模型,以优化PFS在非临床环境中的可行性和适应性.
建议进行进一步的研究,以完善和测试拟议的混合PFS模型.

关键词:

有关反的意见反.参与参与参与参与质量上的影响是有质量的.研究参与者研究参与者系统设计系统设计

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