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导航肺移植的旅程:护理人员的经验和需求的定性研究
Melissa Gonzalez-Alvarez1,2,3, María Jesús Megido4,5, Guillermo Pedreira-Robles1,2
1School of Nursing, Hospital del Mar, Affiliated With Pompeu Fabra University, Barcelona, Spain, parcdesalutmar.cat.
肺移植患者的家庭护理人员经历了显著的角色变化和心理压力. 加强社会和财务支持对于他们的福祉和成功的移植结果至关重要.
科学领域:
- 移植医学 移植医学
- 护理人员支持护理人员支持
- 质量健康研究 质量健康研究
背景情况:
- 肺移植给家庭成员带来了巨大的负担,他们往往成为主要照顾者.
- 照顾者的角色导致了重大的生活变化,包括改变家庭动态,疲劳和心理痛苦.
研究的目的:
- 在整个肺移植过程中探索家庭成员的经历,需求和期望.
- 确定肺移植接受者的非正式照顾者面临的挑战和支持需求.
主要方法:
- 进行了一项定性描述性的现象学研究.
- 对肺移植患者的31名成年亲属进行了深入采访.
- 用Colaizzi的方法分析数据,以确定中心主题.
主要成果:
- 照顾者报告说,他们的家庭和社会角色发生了重大变化,他们经常优先考虑别人的需求而不是自己的需求.
- 尽管经历了疲,护理人员在关键时刻表现出了性.
- 在整个过程中,对未来的焦虑,恐惧和不确定性普遍存在.
结论:
- 家庭照顾者面临着相当大的挑战,包括角色转换和心理痛苦,与过渡理论相一致.
- 强大的社交网络,可靠的信息和财政援助对于护理人员的适应至关重要.
- 整合以护理人员为中心的方法和有针对性的干预措施对于支持这一脆弱人群和改善移植结果至关重要.
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