在直接向消费者进行基因测试后,分享行为和医疗保健利用:系统性审查
Eva Van Steijvoort1, Kaatje Goossens1, Kenji Demesure1
1Department of Public Health and Primary Care, Centre for Biomedical Ethics and Law, KU Leuven, Leuven, 3000, Belgium.
直接面向消费者的基因检测 (DTC-GT) 结果经常与医疗保健专业人员和家庭成员分享. 虽然DTC-GT是DTC-GT,但它们是DTC-GT.
科学领域:
- 遗传学和基因组学 在
- 医疗保健系统研究 医疗保健系统研究
- 消费者健康 消费者健康
背景情况:
- 直接向消费者提供基因检测 (DTC-GT) 越来越容易获得和负担得起.
- DTC-GT公司经常建议消费者咨询医疗保健专业人员来解释结果.
- 这一趋势可能会影响医疗保健系统的利用率和资源分配.
研究的目的:
- 系统地审查DTC-GT消费者共享行为.
- 了解医疗保健专业人员与DTC-GT消费者的经验.
- 评估医疗保健利用情况,包括结果验证和临床行动,DTC-GT后.
主要方法:
- 进行了对2009年至2022年间发表的40篇文章的系统审查.
- 专注于消费者共享模式,医疗保健专业人员互动和医疗保健利用.
- 在PROSPERO注册了系统审查 (CRD42024517079).
主要成果:
- 与医疗保健专业人员分享DTC-GT结果的比例从1%到57%,最常见的是与初级保健提供者分享.
- 19%至76%的医疗保健专业人员报告了与DTC-GT消费者分享结果的经验.
- 与家庭成员 (伴侣,父母,兄弟姐妹) 的分享率很高 (18%-98%),与大家庭的分享频率较低;注意到结果验证和临床行动的情况.
结论:
- 关于DTC-GT对医疗保健系统的影响的最初担忧尚未完全实现.
- 消费者咨询医疗保健专业人员的日益增长的趋势需要做好准备和制定政策.
- 未来的研究应该标准化方法,并扩大美国以外的地理范围.
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