调查快速医疗互操作资源 (FHIR) 标准的使用,以支持PCORnet®基础设施中的数据活动:从PCORnet®协调中心的FHIR飞行员身上学到的教训
Keith Marsolo1,2, Darcy Louzao1, Kim Hart1
1Duke Clinical Research Institute, Duke University School of Medicine, Durham, NC.
Medical care
|January 8, 2026
概括
快速医疗互操作性资源 (FHIR) 的数据提取显示了不参与PCORnet®的机构的可变但可能可行的研究解决方案. 需要进一步的研究来确定适合特定的临床研究研究.
科学领域:
- 医疗信息学 医疗信息学
- 临床研究数据管理数据管理
- 电子健康记录 (EHR) 是一种电子医疗记录.
背景情况:
- PCORnet®使用共同数据模型 (CDM) 进行电子健康记录数据转换,这给非参与机构带来了成本挑战.
- 快速医疗互操作性资源 (FHIR) 为访问电子健康记录数据提供了一种替代方法.
研究的目的:
- 评估FHIR作为非PCORnet®的一部分机构的可行数据解决方案.
- 调查PCORnet®网站的FHIR可用性,并将基于FHIR的提取物与PCORnet® CDM提取物进行比较.
主要方法:
- 一项调查询问机构关于他们生产使用FHIR的情况.
- 使用REDCap FHIR和PCORnet® CDM提取物进行了比较,使用了三个地点的40名患者的数据.
主要成果:
- 73%的受访组织报告在生产中部署FHIR.
- 数据提取的一致性差异很大,科恩卡帕值在诊断,实验室和药物之间从0.01到0.87不等.
结论:
- 基于FHIR的数据提取表明,尽管观察到数据的变化,但对于特定的临床研究具有潜在的实用性.
- FHIR提取物的适用性取决于个别PCORnet®研究的要求.
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