[医疗保健的数字化转型以加强患者的自主权]
Mona Rams1, Stefanie Rudolph1, Petya Zyumbileva1
1Clinical Study Center, Berlin Institute of Health (BIH) at Charité - Universitätsmedizin Berlin, Charitéplatz 1, 10117, Berlin, Deutschland.
Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz
|January 9, 2026
概括
数字健康技术正在改变患者的自主权. 加强患者自主性需要更广泛的概念和结构方法,而不仅仅是技术实施公平医疗保健.
科学领域:
- 生物伦理学生物伦理学
- 医疗信息学 医疗信息学
- 数字健康数字健康
背景情况:
- 患者自主是现代医疗保健的核心原则,日益受到数字化转型的影响.
- 数字技术改变了信息获取和决策,挑战了传统的自治概念.
- 在数字医疗时代,对自主性的纯粹个人主义观点是不够的.
研究的目的:
- 检查数字医疗保健基础设施的要求,以有意义地加强患者的自主权.
- 倡导在数字健康中与自主性进行概念性和结构性的接触.
- 将这些要求描述为以患者为中心的护理的解放任务.
主要方法:
- 在数字医疗保健的背景下对患者自主性的概念分析.
- 检查数字健康整合的社会结构和政治要求.
- 关于医疗保健提供道德和政策原则的文献综述.
主要成果:
- 数字化需要扩大对自主性的理解,超越个人主义概念.
- 有效加强患者自主权需要可靠,多样化,参与性和定向性的数字解决方案.
- 维护自治要求整合政治治理,监管,互操作性和社会响应性.
结论:
- 数字医疗保健基础设施设计必须超越技术实施,以解决自主性的概念和结构方面.
- 社会结构设计任务对于确保数字健康支持患者自主性至关重要.
- 实现以患者为中心的数字医疗保健需要对更广泛的理解和对自主权的强有力的保护做出承诺.
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