滚动,喜欢,诊断吗?没有. 在TikTok上评估巨细胞激活综合征信息
Emily Gansert1, Ricardo J Estrada-Mendizabal2, Matthew M Farley2
1From the Department of Internal Medicine, Mayo Clinic, Jacksonville, Florida.
Allergy and asthma proceedings
|January 9, 2026
概括
关于乳腺细胞激活综合征 (MCAS) 的TikTok视频经常包含有关症状和治疗的错误信息. 医疗保健专业人员创建了大多数内容,但平台上的MCAS信息的质量和准确性仍然令人担忧.
科学领域:
- 医疗信息学 医疗信息学
- 社交媒体 卫生 沟通 沟通
- 患者教育 患者教育
背景情况:
- 相当一部分美国人,大约20%,在咨询医生之前咨询TikTok的健康信息.
- 社交媒体平台越来越多地被用作健康相关内容的主要来源.
- 调查社交媒体上的健康信息的准确性和质量对于公共卫生至关重要.
研究的目的:
- 评估TikTok上受欢迎的乳腺细胞激活综合征 (MCAS) 内容的质量和准确性.
- 在社交媒体上识别MCAS信息传播趋势.
- 评估关于MCAS的TikTok视频中遵守诊断标准和常见的并发情况.
主要方法:
- 对MCAS相关搜索术语的前50个最受关注的TikTok视频进行分析.
- 使用全球质量评分 (GQS) 进行视频质量的独立评估.
- 对内容创作者职业的评估,包括MCAS维也纳标准,以及与POTS/EDS.的关联.
主要成果:
- 在TikTok上的MCAS视频获得了超过650万次浏览,平均每个视频的浏览量为131500次.
- 虽然58%的视频是由医疗保健专业人员制作的,但只有2%提到MCAS维也纳标准,24%将MCAS与POTS/EDS联系起来.
- 平均GQS低至1.94,在症状,诊断,触发因素和治疗中发现了常见的错误信息.
结论:
- 在TikTok上,大多数受欢迎的MCAS内容质量差,并包含大量错误信息.
- 对于MCAS的关键诊断标准在社交媒体内容中经常被遗漏.
- 患者和医疗保健提供者都必须批判性地评估在TikTok等社交媒体平台上共享的健康信息.
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