父母在儿童新癌症诊断后的决策经验:现象学研究
Li-Min Wu1,2, Shyh-Shin Chiou3,4, Pei-Chin Lin3,5
1School of Nursing, Kaohsiung Medical University, Kaohsiung, Taiwan.
Journal of clinical nursing
|January 12, 2026
概括
导航儿童癌症诊断的父母经历了不确定性,经常将决定推迟到专家,同时平衡生活质量和生存. 希望赋予他们权力,成为他们孩子的坚定倡导者.
科学领域:
- 儿科瘤学 儿科瘤学
- 质量健康研究 质量健康研究
- 父母的决策能力
背景情况:
- 儿童癌症诊断给家长带来了重大的挑战.
- 家长的决策是儿科癌症护理的一个关键方面.
研究的目的:
- 描述父母在孩子癌症新诊断后的头六个月内生活的决策经验.
主要方法:
- 在台湾 (2022-2023) 进行的描述性现象学研究.
- 深度采访18位父母,他们的孩子刚被诊断出患有癌症.
- 使用Giorgi方法分析的数据.
主要成果:
- 父母面临的决定是缺乏选择,压倒性的信息和未回答的问题.
- 许多人将决定推迟给医疗保健专业人员,信任他们的专业知识.
- 父母平衡生活质量与生存,在希望中寻找力量,并成为主要照顾者.
结论:
- 对于父母来说,生存的希望是孩子癌症诊断后 navigating 不确定性的主要动机.
- 心理准备和理解可以减轻父母的焦虑.
- 结构化的护理计划可以支持父母过渡到自信的倡导者.
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