乳腺癌男性的信息需求和偏好:对互联网论坛帖子的定性分析
Nicole Schemmel1,2, Julia Lauberger1, Julia Lühnen1,2
1Institute of Health, Midwifery and Nursing Science, Medical Faculty of Martin Luther University Halle-Wittenberg, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany, uni-halle.de.
The breast journal
|January 12, 2026
概括
患有乳腺癌的男性在诊断,治疗和心理健康方面有特定的信息需求. 通过以患者为中心,包容性的医疗保健来解决这些需求,有助于做出明智的决策.
科学领域:
- 在瘤学瘤学.
- 卫生沟通健康沟通
- 定性研究是指质量研究.
背景情况:
- 对于患有乳腺癌的男性,存在有限的性别/性别特定的健康信息.
- 健康信息对于患者共享决策至关重要.
- 性别/性别差异在健康信息开发中经常被忽视.
研究的目的:
- 调查乳腺癌的 cisgender 男人的信息需求和偏好.
- 确定健康信息如何更好地适应这一人口群体.
主要方法:
- 来自互联网论坛的论坛帖子的定性内容分析.
- 选择标准包括主题相关性,语言 (英语/德语) 和公众可用性.
- 使用MAXQDA进行编码,遵循库卡茨的方法.
主要成果:
- 分析了来自三个互联网论坛的96个帖子,发现了信息需求的七个主要类别和26个子类别.
- 关键领域包括疾病流行病学,诊断,治疗,专业服务,康复,生活方式适应和心理健康.
- 患者对当前信息的偏好和获取也是一个重要因素.
结论:
- 这项研究为患有乳腺癌的男性的信息需求提供了新的见解,主要来自德语地区.
- 医疗保健系统有道德义务提供准确,可靠和以患者为中心的健康信息.
- 包容性医疗保健使患者能够做出有关其治疗和福祉的明智决策.
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