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在线关于对克罗恩病进行肠切除的信息
A Whitman1,2, N Husnoo3,4, J Johnston5
1University of Hull, UK.
在线关于克罗恩病 (CD) 肠切除的信息质量中等,难以阅读. 建议患者参与,以改善CD手术患者的基于网络的资源.
科学领域:
- 胃肠病学 胃肠病学
- 手术瘤学手术瘤学
- 医疗信息学 医疗信息学
背景情况:
- 克罗恩氏病 (CD) 经常需要肠切除手术.
- 患有慢性疾病的患者经常在网上寻找健康信息.
- 评估在线患者资源的质量和可读性至关重要.
研究的目的:
- 系统地审查基于网络的关于克罗恩病肠切除的患者信息.
- 评估CD患者考虑手术的在线资源的质量和可读性.
主要方法:
- 使用专家定义的术语对谷歌进行系统搜索.
- 包括以患者为中心的网站,详细介绍CD的肠切除.
- 使用DISCERN工具评估信息质量,并通过Flesch-Kincaid (FK) 评分通过可读性.
主要成果:
- 对27个来源的分析显示质量中等 (DISCERN平均得分为3.1/5).
- 关于切除类型,术后管理和生活方式变化的信息很少.
- 可读性很差,平均FK得分为51.9,需要高级阅读水平.
结论:
- 目前CD肠切除的在线患者信息有限.
- 一些消息来源中存在事实上不正确的信息.
- 建议患者,专业人员和组织之间进行合作,以加强在线健康信息.
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