暴力和多发性硬化症:向神经病学中基于证据的行动呼吁
Cassie Nesbitt1, Anneke Van Der Walt1, Helmut Butzkueven1
1Department of Neuroscience, School of Translational Medicine, Monash University, Melbourne, VIC, Australia; Department of Neurology, MSNI Multiple Sclerosis and Neuro-Immunology, Alfred Health, Melbourne, VIC, Australia.
概括
患有多发性硬化症 (MS) 的人因慢性疾病和不平等而面临暴力风险增加. 更多的研究对于了解患病率和改善MS患者遭受暴力的医疗保健反应至关重要.
科学领域:
- 公共卫生 公共卫生
- 神经学 神经学
- 社会学 社会学 社会学
背景情况:
- 暴力对全球健康构成重大风险,影响身体,心理和社会福祉.
- 患有多发性硬化症 (MS) 的人因慢性疾病,残疾,性别动态和结构不平等等交叉因素而面临更高的风险.
- 现有的关于MS群体内暴力的研究是有限的,缺乏方法的一致性.
研究的目的:
- 审查和综合现有的关于多发性硬化症 (MS) 患者所经历的暴力的文献.
- 在残疾和慢性疾病研究的更广泛背景下,检查暴力对MS护理的相关性.
- 确定知识差距,并提出基于证据的模型,以识别和应对MS护理中的暴力.
主要方法:
- 系统的文献审查,将MS与有关残疾,慢性疾病和暴力的国际证据相结合.
- 综合MS特定文献和更广泛的残疾研究结果.
- 分析潜在的医疗保健系统反应,包括创伤信息化的方法.
主要成果:
- 暴力是残疾人群体中普遍存在的问题,有一致的指标表明它与MS相关.
- 目前,MS患者是受害者-幸存者,在研究和医疗保健系统响应方面服务不足.
- 迫切需要更强有力的证据来确定患病率,了解结果,并评估有效的干预措施.
结论:
- 暴力是多发性硬化症 (MS) 护理中的一个重要问题,需要神经病学家和医疗保健提供者的更多关注.
- 以创伤为基础的方法,敏感的调查和适应的全球框架为将暴力识别和应对纳入MS护理提供了潜在的模型.
- 进一步的研究是必不可少的,以建立一个证据基础,以了解患病率,纵向结果,并安全整合受暴力影响的MS患者的支持.
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