概括
大多数美国人认为,生物标本捐赠者应该分享研究利. 这些公众论数据支持重新考虑目前的做法,这些做法将捐赠者排除在从其生物样本中获得的财务收益之外.
科学领域:
- 生物医学伦理 生物医学伦理
- 公共卫生政策 公共卫生政策
- 这是生物银行.
背景情况:
- 当前的研究实践往往使生物标本捐赠者无法从他们的样本中获利.
- 关于捐助者捐款是否有理由分享利存在争论.
- 关于这个伦理问题的公众意见在很大程度上仍未得到量化.
研究的目的:
- 为了衡量公众对生物标本捐赠者的利分享的看法.
- 调查影响利分享观点的因素.
主要方法:
- 美国成年人进行了一项在线调查,受访者的人口与2020年美国人口普查相匹配.
- 参与者根据研究结果和利益相关者的参与,评估了六种关于利分享的场景.
- 分析了调查数据,以确定公众支持利共享的趋势.
主要成果:
- 大多数 (77.2%) 支持研究人员获利时的利共享,78.9%的赞助商获利.
- 对利分享的支持在不同的人口群体中是一致的.
- 老年人 (65岁以上) 的支持率略低,但仍占多数,支持利分享.
结论:
- 美国公众在很大程度上认为,生物标本捐赠者应该分享研究利.
- 调查结果强烈表明,需要重新评估目前的行业标准,即不与捐助者分享利.
- 这项研究提供了关键数据,为生物银行和翻译研究的伦理准则和政策提供了信息.
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