患有食道缩的儿童的食困难:一项由家长报告的多中心研究
Tut Galai1,2, Shlomi Cohen1,2, Batia Weiss2,3
1Institue of Pediatric Gastroenterology, Dana Dwek Children's Hospital, Tel Aviv Medical Center, Tel Aviv, Israel.
Journal of pediatric gastroenterology and nutrition
|January 15, 2026
概括
患有食道缩和气管-食道囊的儿童常有食困难. 食能力受损是主要原因,需要早期干预以获得更好的结果.
科学领域:
- 儿科手术 儿科手术
- 胃肠病学 胃肠病学
- 发育儿科 发育儿科
背景情况:
- 经常在患有食道缩 (EA) 和气管食道 (TEF) 的儿童中观察到食困难 (FD).
- 关于该儿科群体中FD的患病率和特定风险因素的知识有限.
- 这项研究解决了对EA/TEF患者FD的综合数据的需求.
研究的目的:
- 确定EA/TEF儿童儿科养障碍 (PFD) 的流行率和亚型.
- 为了确定与这种队列中PFDs发展相关的临床和围产因素.
- 评估EA/TEF和PFD儿童多学科后续护理的充分性.
主要方法:
- 一项涉及75名儿童的多中心研究,这些儿童在2005年至2022年期间接受了EA/TEF手术.
- 父母填写一个结构化问卷,评估养问题.
- 使用蒙特利尔儿童医院养量表和共识标准对养技能,营养,医疗和心理社会亚型进行儿科养障碍 (PFD) 的诊断和分类.
主要成果:
- 76%的儿童报告FD的高患病率,主要是由于受损的养技能 (42%).
- 较低的妊娠年龄,低出生体重和延迟的口服养与PFD有显著的关联.
- 只有不到一半的儿童获得了及时和适当的多学科后续护理.
结论:
- 儿童饮食障碍在EA/TEF儿童中非常普遍,饮食能力受损是主要问题.
- 临床和围产因素与PFD的发展有关,强调了早期干预的必要性.
- 多学科后续对改善EA/TEF儿童和相关养挑战的结果至关重要.
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