实体器官移植接受者的患者报告结果测量:当前使用,挑战和未来使用建议
Silke E de Boer1, Coby Annema2, Tim J Knobbe1
1Department of Internal Medicine, Division of Nephrology, University Medical Center Groningen and University of Groningen, Groningen, The Netherlands.
Transplantation
|January 16, 2026
概括
患者报告的结果 (PROs) 和它们的测量 (PROMs) 对于理解移植受体体验至关重要. 它们在固体器官移植中不一致的使用强调了需要标准化的实施,以改善患者的护理和结果.
科学领域:
- 医学研究 医学研究
- 移植科学 移植科学
- 患者为中心的护理
背景情况:
- 全球越来越多的实体器官移植接受者需要了解他们的生活经历.
- 患者报告的结果 (PROs) 从患者的角度直接了解健康状况,包括症状和生活质量.
- 患者报告的结果测量 (PROM) 是重要的工具,但它们在移植中的应用是不一致的.
研究的目的:
- 审查目前在固体器官移植中使用PRO和PROM的情况.
- 确定PROM实施中的挑战和突出举措.
- 提出一个路线图,以便更好地将PROM纳入移植护理.
主要方法:
- 这项研究是一篇叙事性综述.
- 它综合了关于在固体器官移植中使用PRO和PROM的当前文献.
- 它检查了不同器官移植类型的进展和挑战.
主要成果:
- 在固体器官移植中使用PRO和PROM是不一致的,并且在各种器官之间有限.
- 移植导致PROM的开发和实施,而肝,肺和心脏移植则滞后.
- 在PROM选择,应用和解释方面存在重大挑战.
结论:
- 系统地整合PRO和PROM可以加强共享决策,使研究与患者优先事项保持一致.
- 需要标准化PROM的实施,以改善移植受体的临床决策和结果.
- 提出了一个逐步的路线图,以促进在移植中更广泛地采用PROM.
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