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除了Endo以外的任何东西:在子宫内膜异位症诊断中诊断的Buck-Passing
Rita Dexter1, Megan Kitts2, Heather Welty3
1Department of Sociology, Rice University, Houston, Texas, USA.
患有子宫内膜异位症的患者因症状变化和缺乏意识而面临长期的诊断延迟. 这项研究引入了"诊断负担",患者通过专家循环,延迟了子宫内膜异位症的诊断,并突出了妇女健康研究中的系统性问题.
科学领域:
- 医学社会学 医学社会学
- 妇女健康研究 妇女健康研究
- 健康 不公正的不公正
背景情况:
- 由于症状的变化和疼痛的正常化,子宫内膜异位症的诊断往往会延长.
- 缺乏意识和对妇女健康研究的投资不足,导致诊断延迟.
- 认识不公正的框架提供了对患者经历和子宫内膜异位症诊断的见解.
研究的目的:
- 通过认识系统不公正的镜头分析子宫内膜异位症诊断的旅程.
- 在子宫内膜异位症的背景下,引入和定义"诊断责任"的概念.
- 探讨子宫内膜异位症的诊断延迟如何成为解释学不公正的例子.
主要方法:
- 使用深度采访进行的定性研究.
- 收集了来自美国52名患有子宫内膜异位症的人的数据.
- 分析的框架是认识不公正的概念,废弃的科学,和故意的无知.
主要成果:
- 鉴定了"诊断的超越"作为一个现象,患者被反复转介在专家之间,延迟诊断.
- 证明了子宫内膜异位症的诊断延迟与系统性问题 (如资金不足的研究和知识缺口) 有关.
- 强调了由于对子宫内膜异位症症状的理解和认知不足而导致的解释不公正的经验.
结论:
- 子宫内膜异位症的诊断延迟被系统性问题和认识系统的不公正加剧,特别是"诊断负担".
- 解决诊断延迟需要解决女性健康研究投资不足的问题,并提高临床意识.
- 承认子宫内膜异位症是解释学不公正的场所,对于改善患者护理和治疗结果至关重要.
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