概念化结核病的经验:一项全球定性研究
D Oberdhan1,2, M Hill1, A Gillman3
1Otsuka Pharmaceutical Development and Commercialization, Inc., Rockville, MD, USA.
IJTLD open
|January 19, 2026
概括
结核病 (TB) 在身体,情感和经济方面显著影响患者的生活. 了解这些不同的患者体验对于改善全球医疗保健至关重要.
科学领域:
- 公共卫生 公共卫生
- 传染性疾病 传染性疾病
- 社会科学 社会科学 社会科学
背景情况:
- 已知结核病 (TB) 和其治疗会对与健康有关的生活质量产生负面影响.
- 关于肺结核患者个人经历的数据有限.
研究的目的:
- 通过综合现有文献和当代社交媒体数据来概念化结核病 (TB) 的个人经验.
- 了解结核病对全球个人及其照顾者的多方面的影响.
主要方法:
- 进行了有关结核病经验的出版文章和在线内容的文献综述.
- 分析了来自多个国家和收入水平的社交媒体帖子 (2020-2022),以捕捉当前患者和护理人员的观点.
- 开发了一种结核病症状,影响和挑战的概念模型.
主要成果:
- 文献审查产生了结核病症状,影响和挑战的概念模型.
- 来自15个国家的社交媒体分析揭示了显著的身体 (48%),情感 (28%),经济 (18%) 和社会 (13%) 影响.
- 结核病的诊断往往与延迟,访问问题和与COVID-19症状的混有关.
结论:
- 世界各地的结核病患者在多个生命维度中经历了影响.
- 这些影响的性质和严重程度受到地理位置,社会经济地位和文化背景的影响.
- 需要进一步的研究来解决受结核病影响的人的特定,局部经验.
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