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研究范式不匹配:患者和医疗保健专业人员如何在线寻找与健康有关的信息
John Geracitano1, Kaushalya Mendis2, Saif Khairat1,2,3
1Carolina Health Informatics Program, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
The Permanente journal
|January 20, 2026
概括
患者和医疗保健专业人员寻找在线健康信息的方式不同,患者喜欢社交媒体,从业者喜欢同行评审的文献. 这种知识差距影响了共同的决策和健康结果.
科学领域:
- 卫生沟通健康沟通
- 医疗信息学医学信息学
- 患者的参与度 患者的参与度
背景情况:
- 了解在线健康信息搜索对于减轻知识差距至关重要.
- 改善共享决策和健康结果取决于有效的信息解释.
- 在线健康信息的获取越来越受到人工智能工具的影响.
研究的目的:
- 确定患者,从业者和医疗保健研究人员如何在线搜索健康信息的主题.
- 通过更好地了解在线信息搜索行为来改善决策过程.
- 为了解决在线健康信息的差异,寻求跨利益相关者群体的健康信息.
主要方法:
- 从2024年10月到2025年2月进行的定性焦点小组研究.
- 感应性主题分析用于从焦点小组会议中识别新出现的主题.
- 31名参与者参加了7个焦点小组会议,人口代表性不同.
主要成果:
- 出现了三个主要主题:在线来源,社交媒体使用和信任.
- 患者越来越多地使用社交媒体 (例如Reddit,TikTok) 进行同行叙述.
- 实践者主要咨询同行评审的文献,创造信息不对称.
结论:
- 患者和从业人员之间在线健康信息搜索模式的分歧可能会破坏共享决策.
- 所有的群体都在谷歌上发起搜索,但依赖于表面级别的可信度标记.
- 建议包括整合来自患者的信息培训,临床讨论和证据翻译.
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