来自r/CleftLip的见解:患者经验和建议
Ashley Shin1, Riley Shin2, Nicholas S Hernandez3
1Department of Plastic and Reconstructive Surgery, Baylor Scott & White Medical Center, Temple, TX.
The Journal of craniofacial surgery
|January 20, 2026
概括
在线裂患者论坛揭示了关键问题,负面情绪通常与自尊和美学手术有关. 了解这些讨论可以改善以患者为中心的护理.
科学领域:
- 医疗信息学 医疗信息学
- 自然语言处理自然语言处理.
- 患者报告的结果
背景情况:
- 像Reddit这样的在线社区越来越多地被裂患者和家属用于支持和医疗信息.
- 这凸显了了解在线患者讨论的必要性,以告知医疗保健提供者.
研究的目的:
- 描述在线讨论关于口唇裂的性质和情绪.
- 使用自然语言处理 (NLP) 识别主要的患者和家庭问题.
主要方法:
- 分析来自r/cleftlip subreddit的顶级"建议"帖子.
- 使用NLP进行情感分析来分类后音 (积极,消极,中立).
- 研究人员逐行编码,以确定突出的主题和子主题.
主要成果:
- 分析了141个帖子,46.1%是负面的,30.5%是积极的,23.4%是中立的情绪.
- 主题:美容手术,自尊问题,寻求支持,言语问题,外科医生建议.
- 在自尊,美学和寻求支持的类别中确定了子主题.
结论:
- 意识到在线患者的情绪和担忧可以增强咨询和建议.
- 这种理解支持了改进的,当代的,以患者为中心的裂口护理.
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