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为创伤性脑损伤患者设计电子问题解决培训:混合方法,基于社区的参与研究案例研究
Matthew Schmidt1,2, Yueqi Weng2, Shannon Juengst3
1College of Pharmacy, Department of Clinical and Administrative Pharmacy, University of Georgia, River's Crossing, 215, Athens, GA, 30602, United States, 1 (706) 542-3000.
Journal of medical Internet research
|January 20, 2026
概括
基于社区的参与型研究 (CBPR) 提高了对创伤性脑损伤 (TBI) 患者移动医疗干预的可用性. 这种方法确保了电子问题解决培训 (ePST) 工具对TBI幸存者来说是可访问的,有效的和以用户为中心的.
科学领域:
- 康复研究 康复研究
- 人与计算机的互动.
- 数字健康数字健康
背景情况:
- 传统的TBI康复研究往往忽视了TBI患者的经历,导致干预缺乏相关性和有效性.
- 基于社区的参与型研究 (CBPR) 提供了一个协作框架,赋予患者,护理人员和临床医生在研究中的权力.
- CBPR强调权力共享和持续参与,以创造更具影响力的健康解决方案.
研究的目的:
- 将CBPR原则应用于电子问题解决培训 (ePST) 移动健康 (mHealth) 干预对TBI患者的设计和可用性评估.
- 在整个设计过程中整合社区反,从最初的概念到最终的原型.
- 评估ePST干预与TBI合作伙伴的社会技术教学可用性.
主要方法:
- 以CBPR原则和学习体验设计为指导的混合方法案例研究设计.
- 利用33名成员的社区咨询委员会和10个社区参与工作室,涉及TBI幸存者,护理人员,临床医生和研究人员.
- 采用了同理心访谈,人格发展,快速原型设计和可用性测试,使用大声思考协议和学习技术可用性综合评估 (CAUSLT) 仪器.
主要成果:
- 共同设计过程将社区反转化为以同理心为基础,以用户为中心的原型,确定TBI特定的设计需求,如线性进展和清晰度.
- 可用性测试显示,参与者在复杂的导航方面遇到了困难,但在连续的内容方面表现出色;实际的改进包括更短的课程和简化导航.
- ePST干预表明了高的整体可用性 (CAUSLT评分4.25/5),80%的知识准确性,100%的模块完成率和高效的任务完成时间,表明有效的学习和理解.
结论:
- 在整个ePST mHealth工具的设计和开发过程中,持续的CBPR导致了TBI患者的高可用性.
- 这项研究建立了一个全周期的管道,将社区伙伴关系与可测量的可用性成果联系起来,用于mHealth开发.
- 该研究产生了社区知情设计原则和可重复的混合方法方法方法,用于TBI康复中的形成性mHealth发展.
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