一个e-Delphi的方法来开发一个患者报告的结果指标来评估功能性/离散性发作的严重程度
Gregg Harry Rawlings1, Laura Whitaker2, Chris Gaskell2
1Clinical and Applied Psychology Unit, University of Sheffield, UK.
Seizure
|January 20, 2026
概括
研究人员就新的功能性/离散性发作 (FDS) 严重程度尺度项目达成共识. 这种患者报告的结果测量将有助于对这种衰弱状况的临床和研究应用.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 患者报告的结果
背景情况:
- 功能性/离散性 (FDS) 是一个重大的临床挑战,原因是缺乏有效的严重性测量方法.
- 开发可靠的FDS严重程度尺度对于临床管理和研究进步至关重要.
研究的目的:
- 为了在评估FDS严重性的患者报告结果测量项目的项目上达成共识.
- 开发一种特定条件的工具来评估FDS的影响.
主要方法:
- 采用了三轮的电子-德尔菲调查.
- 参与者包括FDS患者,医疗保健专业人员,研究人员和护理人员.
- 基于参与者反的调查任务的代开发确保了强大的共识建设.
主要成果:
- 共有90名参与者启动了这项研究,其中55人完成了第三轮.
- 评估了136个候选项目,最终得到了29个严重程度项目,6个频率/持续时间项目和症状检查清单的最终测量.
- 在最后一轮的参与者中,90%的人对拟议的FDS严厉措施表示满意.
结论:
- 在FDS严重程度等级的项目上达成共识,尽管这种情况的固有变化.
- 由专家和有实践经验的个人共同制作的开发措施已经准备好进行未来的验证.
- 这种新的尺度有望增强FDS的临床实践和研究.
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