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主要的状动力障碍:国家专家就护理标准的共识声明

Evie A Robson1,2, Giulia Spoletini3,2, Amelia Bercusson4,5,2

  • 1Paediatric Primary Ciliary Dyskinesia Management Service, Leeds Centre for Children's Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.

ERJ open research
|January 21, 2026
PubMed
概括

为英格兰制定了初级状动力障碍 (PCD) 护理标准,详细说明了儿童和成人15项基本规定. 这种共识旨在改善这种罕见遗传疾病患者的专业护理.

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