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Updated: Jan 23, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
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加强脊柱肌肉缩的临床能力:开发和实施临床结果评估培训

Homira Osman1, Maria Masnata1, Zainab Adamji1

  • 1Muscular Dystrophy Canada, Toronto, Canada.

Journal of neuromuscular diseases
|January 21, 2026
PubMed
概括

教育研讨会显著改善了使用临床结果评估 (COA) 评估脊髓肌肉缩 (SMA) 的临床准备. 这一举措增强了评估人员在罕见疾病护理方面的信心和技能.

关键词:
临床评估员培训 临床评估员培训临床结果评估 临床结果评估卫生系统的能力 卫生系统能力翻译知识翻译知识翻译神经肌肉疾病 神经肌肉疾病结果措施的结果措施.罕见疾病是一种罕见的疾病.脊柱肌肉缩 脊柱肌肉缩 脊柱肌肉缩

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