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确定加拿大多发性硬化症未来研究如何考虑公平,多样性和包容性的优先事项:修改后的e-Delphi研究
Ruth Ann Marrie1, Afolasade Fakolade2, Colleen J Maxwell3
1Department of Medicine, Faculty of Medicine, Dalhousie University, Halifax, NS, Canada; Department of Community Health and Epidemiology, Faculty of Medicine, Dalhousie University, Halifax, Canada; Department of Medicine, Nova Scotia Health Authority, Halifax, NS, Canada.
概括
加拿大的未来多发性硬化症 (MS) 研究需要优先考虑公平,多样性和包容性 (EDI). 这项研究确定了在MS研究中需要改进的关键领域,以确保对所有受该疾病影响的人员提供更好的代表性和结果.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 卫生研究方法论 卫生研究方法论
背景情况:
- 历史上,多发性硬化症 (MS) 研究缺乏多样化的参与者代表.
- 解决MS研究中的不平等问题对于全面理解和治疗至关重要.
- 当前的研究范式可能无法充分捕捉受MS影响的所有人群的经验.
研究的目的:
- 在加拿大多发性硬化症 (MS) 研究中,就加强公平,多样性和包容 (EDI) 的优先事项达成共识.
- 为了确定可行的策略,以改善EDI在MS研究格局.
- 引导成员国未来的研究资金和政策决策.
主要方法:
- 采用了经过修改的e-Delphi技术,涉及三轮调查.
- 参与者包括有实践经验的个人 (MS患者或家庭成员),EDI研究人员和MS临床医生.
- 调查集中在五个领域:多样性测量,招聘策略,资助者和出版商的角色,以及培训需求.
主要成果:
- 87名参与者完成了最初的调查,在随后的轮次 (82名和81名参与者) 中保持高的保留率.
- 在五个领域中,共识驱动的45个项目被确定,这表明在优先事项上有强烈的共识.
- 大多数共识项目被认为是可以实现的,这表明实际实施是可行的.
结论:
- 这项研究成功地确定了将EDI整合到加拿大MS研究中的关键优先事项.
- 这些发现为研究人员,资助者和机构提供了一份路线图,以促进更具包容性的研究实践.
- 实施这些优先事项可以导致在多发性硬化症护理和治疗结果方面取得更公平,更有效的进展.
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