与智力障碍者并为智力障碍者共同制作患者报告经验测量 (PREM)
Bronwyn Newman1, Ling Wu2, Laurel Mimmo1,3
1Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, Australia.
概括
这项研究为智力障碍者开发了听我患者报告体验测量 (PREM) 测量. 这些可访问的工具捕捉了患者的体验,以改善这一群体的医疗保健获取和质量.
科学领域:
- 医疗保健可访问性研究
- 测量患者体验的测量方法
- 智力障碍 医疗保健 智力障碍 医疗保健
背景情况:
- 患者报告体验测量 (PREM) 对医疗保健质量至关重要,但对智力残疾人来说未得到充分利用.
- 这一群人往往面临着获得医疗保健的重大障碍,并经历了较差的结果.
- 包容性研究对于解决这些差异至关重要.
研究的目的:
- 共同开发专门为智力障碍者设计的患者报告体验测量 (PREM).
- 确保该工具是可访问的,并捕捉到这个人口群的真实经验.
主要方法:
- 通过涉及智障人士,支持人员,研究人员和医疗保健专业人员的混合研讨会进行联合制作.
- 在为期3年的研究项目中,采用了包容性数据收集方法.
- 在初步的用户测试中,使用了半结构化的采访,采用"大声思考"的方法.
主要成果:
- 联合制作过程涉及各种利益相关者,包括智障人士及其支持网络.
- 由此产生的9项"听我说"PREM是数字化的,具有大型字体和音频选项等功能.
- 初步测试涉及11名智障人士,满足各种沟通需求.
结论:
- 听我的PREM提供了一种创新的,可访问的方法,可以直接捕捉智力障碍患者的患者体验.
- 实施这些措施使卫生服务能够识别医疗保健提供改善的领域.
- 这可以为有重大医疗需求的消费者带来更好的获取,质量和结果.
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