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有经验的人对严重急性创伤性脑损伤后可接受的结果的观点
Yelena G Bodien1,2,3,4,5,6, Lydia Borsi1, Ellyn Pier1
1Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Charlestown, MA.
Critical care medicine
|January 23, 2026
概括
创伤性脑损伤 (TBI) 患者及其护理人员将沟通恢复确定为最少可接受的结果. 这一发现表明需要更多以个人为中心的TBI护理,承认患者对康复目标的看法.
科学领域:
- 神经科学是一个神经科学.
- 康复医学 康复医学 康复医学
- 患者报告的结果
背景情况:
- 严重的创伤性脑损伤 (TBI) 显著影响功能恢复和生活质量.
- 定义可接受的功能恢复水平对于在TBI康复中设定现实的目标至关重要.
- 临床医生感知和患者感知的康复结果之间经常存在差异.
研究的目的:
- 从TBI患者及其护理人员的角度来看,从严重TBI后确定功能恢复的最低可接受水平.
- 确定TBI患者及其支持网络的最低可接受结果 (MAO).
主要方法:
- 在美国,与TBI患者和TBI护理人员进行了一项横截面在线调查.
- 扩展的格拉斯哥结局尺度-扩展被用来评估11个TBI结局里程碑的可接受性.
- 从252名TBI患者和256名TBI护理人员收集了数据.
主要成果:
- 恢复基本的"是"/"不"沟通被确定为最少可接受的结果 (MAO),无论是TBI患者还是护理人员.
- 65%的TBI患者和72%的护理人员认为这种沟通恢复是可以接受的或有点可以接受的.
- 低于完全独立的结果经常被选为MAO,表明有生活经验的个人更容易接受残疾负担.
结论:
- 对受影响个人及其照顾者来说,恢复沟通是创伤后最低可接受的功能状态的关键指标.
- 关于可接受的恢复水平,TBI/护理人员和医疗保健提供者的观点之间存在很大的差异.
- 临床决策和TBI结果评估应采用更加以人为中心的方法,纳入患者和护理人员定义的目标.
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