功能神经障碍中的耻辱;一个纵向研究
Caoimhe Mcloughlin1, Neil Ramsay2, Lineke Tak3
1Centre for Clinical Brain Sciences, University of Edinburgh, 49 Little France Crescent, Edinburgh EH16 4SB, United Kingdom.
Journal of psychosomatic research
|January 24, 2026
概括
功能神经障碍 (FND) 患者经历了显著的感知,内化和预期的耻辱. 这些挑战,以及伴随疾病,并没有随着时间的推移而有所改善,这凸显了需要采取更广泛的反耻辱倡议的需要.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 医学社会学 医学社会学
背景情况:
- 耻辱感是功能神经障碍 (FND) 患者的一个主要挑战.
- 在FND中对耻辱成分的长度评估对于了解患者体验至关重要.
- 探索与耻辱相关的因素可以为有针对性的干预提供信息.
研究的目的:
- 纵向评估FND患者的感知,内化和预期的耻辱感.
- 确定与FND不同类型的耻辱相关的因素.
- 评估随着时间的推移,耻辱和相关因素的变化.
主要方法:
- 从门诊诊所招募FND患者的前景招募.
- 使用经过验证的对耻辱,身体负担,生活质量,抑郁,焦虑和疾病归因的措施.
- 在平均持续时间为7个月后进行后续评估.
主要成果:
- 观察到中等的感知耻辱评分.
- 32%的患者内化了耻辱感,认为FND是他们的错.
- 预期的耻辱是来自工作的最高,其次是医疗保健,朋友和家人.
- 认定自己是男性,处于恋爱关系中,年龄较大,受过教育是防止耻辱的保护.
- 随访时没有注意到对耻辱,体质负担,生活质量,焦虑或抑郁的显著变化.
结论:
- 患有FND的患者经历了大量和持续的感知,内化和预期的耻辱.
- 在FND中,高水平的身体和心理并发症普遍存在.
- 反污名化策略必须超越医疗保健专业人员,以解决多种污名化来源.
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