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作为 (a) 通过辅助生殖技术在线社区的患者导航欲望
Alessandra Decataldo1, Elena Andreoni1
1Department of Sociology and Social Research, University of Milan-Bicocca, Milan, Italy.
Frontiers in sociology
|January 26, 2026
概括
在线社区为意大利接受辅助生殖技术 (ART) 的个人提供了至关重要的支持,意大利是一个面临人口衰退的国家. 这些数字空间有助于管理与不孕症治疗相关的耻辱和情绪挑战.
科学领域:
- 卫生和医学社会学.
- 数字社会学 数字社会学
- 生殖技术 生殖技术
背景情况:
- 意大利正在经历显著的人口下降,越来越依赖辅助生殖技术 (ART).
- 在医学上,ART是先进的,但在社会上受到污名化,导致接受治疗的个体被孤立.
- 在线平台已经成为导航ART复杂性的关键空间.
研究的目的:
- 探索Facebook,Telegram和ForumFree等平台上的数字社区如何作为ART的社会技术环境.
- 研究在这些在线空间中的生殖欲望的表达和转变.
- 专注于关键主题,包括耻辱,知识共享和ART旅程中的情感支持.
主要方法:
- 在三个不同的数字平台上进行了网图学研究:一个ForumFree论坛,Facebook群组和一个Telegram聊天.
- 数据收集涉及到网络抓取,手动存档和特定平台的数据提取工具.
- 使用NVivo软件进行了基于理论的分析,重点关注医学知识,情感支持和父母的表现性.
主要成果:
- 数字社区主要由女性参与者组成,这反映了对寻求健康信息的更高参与度和ART的不平等负担.
- 这些平台通过提供验证,情感支持和使焦虑正常化来使ART体验合法化.
- 从共同的临床和个人叙述中出现了混合的定位知识,以及管理不确定性和预测父母的仪式化实践.
结论:
- 辅助生殖技术是一个复杂的经验,由临床,情感和关系因素塑造,由于意大利的社会耻辱,经常被推入数字领域.
- 在线平台 (Telegram,Facebook,ForumFree) 提供必要的社区,支持和分享经验的手段,从而减轻孤立.
- 虽然有价值,但这些数字空间也带来了错误信息和访问障碍等挑战,凸显了数字故事讲述对构建生殖主观性的深刻影响.
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