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与艾滋病毒相关的社会网络研究中的伦理问题 涉及对艾滋病毒有风险的吸毒性少数群体
Britt Skaathun1, Alera Dermody1, Karla D Wagner2
1Department of Medicine, Divison of Infectious Diseases and Global Public Health, University of California San Diego, La Jolla, CA, USA.
概括
社会网络研究 (SNR) 对吸毒性少数群体的艾滋病毒预防有好处,超过了感知到的风险. 参与者倾向于社区同意和混合方式的知情同意,担心共享姓氏.
科学领域:
- 社交网络研究 社交网络研究
- 预防艾滋病毒 预防艾滋病毒
- 性少数群体的健康问题
背景情况:
- 社交网络研究 (SNR) 通常涉及从个人收集关于他们的网络成员的数据,而没有明确的同意.
- 处于艾滋病毒风险的吸毒性少数群体面临着与研究中的隐私和同意有关的独特挑战.
研究的目的:
- 评估SNR在艾滋病毒风险性少数群体中所感知的好处和风险.
- 了解艾滋病毒研究中对这一群体的首选知情同意流程.
主要方法:
- 对20次采访的定性主题分析,采访了与男性发生性关系的有色人种 cisgender 男人和报告的药物使用情况.
- 探索与艾滋病毒相关的SNR感知风险/益处,与日常生活风险进行比较,以及首选的同意格式.
主要成果:
- 大多数参与者认为SNR是有利的,认为它比日常生活风险更小.
- 参与者更喜欢通过网络成员招募获得"社区同意",并认为艾滋病毒研究的好处超过了风险.
- 关于共享有关物质使用的识别信息 (例如姓名) 的意见不同;优先同意涉及俗语视频和书面格式.
结论:
- 对于艾滋病毒预防和护理而言,SNR的感知好处超过了对这一群体的风险.
- 研究人员应仔细考虑是否需要在与艾滋病毒相关的SNR中收集姓氏.
- 社区同意和可访问的混合方法同意格式对于脆弱人群的伦理SNR至关重要.
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