共同研究计划的评估:优化参与研究的参与
Ashley Scott1, Sophie Rowland1, Aniqua Mehdi1
1Boston University School of Public Health, Boston, Massachusetts.
British journal of learning disabilities
|January 26, 2026
概括
共同研究方法提高了智力和发育残疾人的包容性. 在DS-TO-THE-MAX计划的评估中强调了关系和可访问的沟通对于成功的研究合作的重要性.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 关于残疾人的研究.
- 基于社区的参与式研究
背景情况:
- 共同研究方法越来越多地被用于使智力和发育障碍 (IDDs) 患者参与研究.
- 在DS-TO-THE-MAX联合研究计划对合研究员与唐氏综合征和学术研究人员的健康研究项目.
- 本研究评估了DS-TO-THE-MAX计划的流程和结果,以了解其有效性.
研究的目的:
- 评估DS-TO-THE-MAX联合研究计划的流程和成果.
- 在共同研究团队内确定促进包容性合作的促进者和障碍.
- 了解患有唐氏综合征的共同研究人员的经验和观点.
主要方法:
- 开发了一个逻辑模型来映射程序组件和结果.
- 与7名患有唐氏综合征的共同研究人员进行了半结构面试.
- 一个焦点小组与研究助理举行,并使用专题分析来解释数据.
主要成果:
- 相互认可和多样化的沟通方法促进了团队的参与和凝聚力.
- 共同研究人员的贡献是由个人兴趣和经验驱动的,导致感知到的好处.
- 他们注意到了可访问的实践和自我宣传,尽管参与者并不总是认定自己是研究人员;挑战包括难以理解的词汇.
结论:
- 关系和共同研究者的实践经验对于成功的研究参与至关重要.
- 共同研究团队的评估提供了一种可行的方法,以加强IDD患者的包容性合作.
- 结果为改善共同研究计划提供了见解,以最大限度地提高所有团队成员的参与和价值.
相关概念视频
03:00Self-Evaluation: Self-Enhancement and Self-Verification
5.8K
Social psychologists have documented that feeling good about ourselves and maintaining positive self-esteem is a powerful motivator of human behavior (Tavris & Aronson, 2008). In the United States, members of the predominant culture typically think very highly of themselves and view themselves as good people who are above average on many desirable traits (Ehrlinger, Gilovich, & Ross, 2005). Often, our behavior, attitudes, and beliefs are affected when we experience a threat to our...
5.8K
01:15Nursing Evaluation
4.3K
The evaluation stage signals the end of the nursing process. The nurse gathers evaluative data to assess whether or not the patient has attained the expected results. Whereas the nurse collects data in the nursing assessment to identify the patient's health concerns, the evaluation stage data determines if the indicated health issues are resolved. Evaluative data collection includes two sections: the data acquired to evaluate patient outcomes and the time criteria for data collection.
4.3K
01:29Self-Evaluation Maintenance Model
290
The Self-Evaluation Maintenance (SEM) model offers a psychological framework to understand how individuals’ self-esteem is influenced by the achievements of others, particularly those with whom they share close personal bonds. The SEM model operates when personal rather than social identity guides individuals. Central to this model is the notion that individuals have an inherent desire to preserve a favorable self-image, which is continuously shaped by interpersonal comparisons and...
290
01:30Dysrhythmias V: Evaluating Dysrhythmias
367
Dysrhythmias, also known as arrhythmias, are disturbances in the heart's rhythm that range from benign to life-threatening. A thorough evaluation is crucial for appropriate management and involves a comprehensive medical history, physical examination, and various diagnostic tests.Medical HistorySymptoms: Collect detailed information on palpitations, dizziness, syncope, chest pain, and fatigue. Note their onset, frequency, and triggers.Previous Cardiac Issues: Document any history of heart...
367
01:30Social Foundations of Self III: Self-Evaluation
190
Self-evaluation is the process by which individuals assess their abilities, behaviors, and characteristics based on feedback from others. Charles H. Cooley observed that a person’s self-perception is primarily influenced by how others see and judge them. He suggested that individuals form their identities based on their interpretations of others' reactions. As a result, social interactions play a crucial role in shaping self-esteem and personal identity. These external evaluations often...
190
01:30Heart Failure IV: Classification and Diagnostic Evaluation
368
Heart failure can be classified in various ways, with the most common classifications based on physical activity limitations, disease progression, severity, and treatment strategies.The Functional Classification of Heart Failure divides patients into four categories based on physical activity limitation due to symptom burden.Class I: Patients in this class have cardiac disease but no physical activity limitations. Ordinary activities like walking, climbing stairs, or routine tasks do not cause...
368