悲伤的父母对他们的孩子死于癌症的叙述:一种定性研究
Christy M Lucas1,2,3, Benjamin Herold3, Martha Montello2
1Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts.
Pediatrics
|January 26, 2026
概括
丧亲的父母经常分享他们死去的孩子的故事,专注于孩子.
科学领域:
- 儿科瘤学 儿科瘤学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 讲故事是人类处理痛苦和损失的基本机制.
- 孩子去世后失去父母是一个深刻的经历.
- 叙述在家长丧亲关怀中的作用未得到充分利用.
研究的目的:
- 探索为孩子癌症死亡而悲伤的父母如何选择分享孩子的故事.
- 了解悲伤的父母分享的叙述的内容和结构.
主要方法:
- 基于调查的双站点研究的二次分析.
- 使用自由文本响应的诱导性,代性分析进行定性调查.
- 专注于父母的孩子死于癌症6到24个月前.
主要成果:
- 在128名家长中,有101名 (79%) 的家长分享了关于他们死去的孩子的故事.
- 叙事的结构和内容各不相同,强调了孩子的外表,特征和激情.
- 父母的叙述经常将孩子描绘成"异世界",通过医疗化,人性化和超自然化的主题进步.
结论:
- 悲伤的父母表现出强烈的愿望,分享他们的孩子的故事.
- 叙事中的主题进展可能有助于叙事修复和处理悲伤.
- 了解这些叙述可以为父母丧生的支持性干预措施的开发提供信息.
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