父母对他们的孩子急性淋巴细胞白血病的物理治疗的观点:道尽头的光
Paula A Ospina1, Palana Shah1, Livleen Dhaliwal1
1Department of Physical Therapy, Faculty of Rehabilitation Medicine, College of Health Sciences, University of Alberta, Edmonton, AB T6G 2G4, Canada.
Current oncology (Toronto, Ont.)
|January 27, 2026
概括
由于障碍,许多患有癌症的儿童错过了物理治疗 (PT). 父母更喜欢方便的位置和虚拟选择,在化疗期间更早地引入PT对儿科癌症患者有益.
科学领域:
- 儿科瘤学 儿科瘤学
- 康复医学 康复医学 康复医学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 物理治疗 (PT) 转诊对于患有癌症的儿童来说很常见,但服务出席率往往很低.
- 了解父母对PT的看法对于改善儿童癌症护理的准入和遵守至关重要.
- 阻碍PT使用的障碍会对接受癌症治疗的儿童的康复结果产生重大影响.
研究的目的:
- 探讨家长对急性淋巴细胞白血病儿童物理治疗 (PT) 服务提供的看法.
- 为了确定影响PT访问和坚持这一儿科瘤学人群的障碍和促进者.
- 确定PT引入的最佳时间和父母对虚拟或混合服务模型的偏好.
主要方法:
- 试点研究涉及一个横截面调查和半结构面试与急性淋巴细胞白血病儿童的父母.
- 基于理论领域框架的调查问题,映射到能力,机会,动机-行为变化模型.
- 20名家长完成了调查,7名家长参加了采访.
主要成果:
- 父母为孩子提供PT的机会取决于方便的位置 (70%) 和虚拟分娩的可用性 (45%).
- 一半的家长在化疗的维持阶段更喜欢PT,但如果将其作为标准护理,在巩固期间更早的引入会得到支持.
- 关键的障碍包括时间限制,距离和成本;家长对混合PT模式和基于社区的服务敏感.
结论:
- 解决地理位置等物流障碍和提供虚拟PT选项对于改善儿童癌症服务利用率至关重要.
- 早期将PT纳入治疗方案,特别是在巩固阶段,可能会提高坚持.
- 混合PT模型和社区合作伙伴关系在克服儿童癌症康复的共同家长障碍方面显示出前途.
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