身体活动作为多发性硬化症社会包容的工具:对定性,定量和混合方法证据的系统审查
Federica Marzoli1, Ludovica Cardinali2, Gianluca Di Pinto1,3
1Department of Economic, Psycological, Communication, Education and Movement Sciences, University "Niccolò Cusano", 00166 Roma, Italy.
Sports (Basel, Switzerland)
|January 27, 2026
概括
身体活动 (PA) 帮助多发性硬化症 (PwMS) 患者通过同行支持,专业指导和身份转变来克服社会障碍. 基于小组的,可访问的PA计划促进了PwMS的社会包容.
科学领域:
- 康复科学 康复科学 康复科学
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 患有多发性硬化症 (PwMS) 的人遇到严重的社会障碍,如耻辱和难以接近,限制了体力活动 (PA) 的参与.
- 虽然PA对身体和精神健康有好处,但它对减少PwMS社会障碍的影响仍未得到充分研究.
- 现有的研究缺乏对PA如何影响多发性硬化症患者的社会参与和包容性的综合理解.
研究的目的:
- 系统地综合有关身体活动与多发性硬化症患者社会障碍之间的关系的证据.
- 确定身体活动可以缓解社会限制并增强多发性硬化症社会结果的机制.
- 为PwMS提供有效的PA干预措施的发展信息,以解决社会包容问题.
主要方法:
- 在PubMed,Scopus和Web of Science数据库 (1997-2025) 中进行了系统的文献搜索,遵守PRISMA 2020指南.
- 包括的研究包括定性,定量和混合方法设计,调查PA在社会障碍,促进者或PwMS结果中的作用.
- 由于研究异质性,采用了主题综合,并使用多个既有工具 (JBI,NIH,RoB 2.0,MMAT) 评估偏差风险.
主要成果:
- 包括29项研究,揭示了三个关键机制: 1) 同行支持和在小组PA中分享经验减少了孤立和正常化症状.
- 2) 有知识的专业人士的指导培养了信任,信心和安全.
- 3) PA促进了社会认同从"病态角色"转变为"运动员"或"运动员"等积极角色,并得到了关于自我效能和社会支持的定性见解和定量数据的支持.
结论:
- 身体活动对于患有多发性硬化症的人来说是一种社会变革的实践,特别是在以小组为基础,受到监督和可访问的环境中.
- 干预有意促进同行联系,专业支持和积极的身份发展对于克服社会障碍至关重要.
- 有针对性的PA计划可以显著提高多发性硬化症患者的社会包容性和参与度.
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