一个定性研究的治疗经验,在青年与失声症和他们的父母之间的治疗经验
Servando Rodriguez-Barajas1, Sarah J Sadek1, Catherine E Rast2
1Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, Houston, TX.
患有失声症的年轻人及其照顾者面临着重大挑战,因为有限的认识和缺乏标准治疗方法,无法获得护理. 改善提供者教育和支持对于这些寻求有效失声症管理的家庭至关重要.
科学领域:
- 神经科学是一个神经科学.
- 心理学 心理学 心理学
- 获得医疗保健 获得医疗保健 获得医疗保健
背景情况:
- 失声症是一种导致严重情绪和生理困扰的疾病,它是对特定声音的反应.
- 医疗保健提供者缺乏认可,缺乏基于证据的指导方针,阻碍了对失声症的有效治疗.
- 导航医疗保健系统的失声症治疗给受影响的年轻人和他们的家人带来了巨大的挑战.
研究的目的:
- 探索患有失声症的青少年及其照顾者的医疗保健经验.
- 为了确定在寻求治疗失声症的障碍和促进者.
主要方法:
- 定性研究涉及对20个父母-子女二合体进行专注采访.
- 对面试数据进行主题分析,以确定反复出现的经验和主题.
主要成果:
- 关键主题包括最低的意识,知识丰富的专业人员的稀缺性,有限的资源,缺乏标准化的治疗,和错误诊断.
- 参与者报告了严重的情绪困扰,包括绝望和丧.
- 积极的经验集中在从同情的医疗保健提供者获得的验证上.
结论:
- 需要加强支持系统和改善医疗保健提供者的教育,以改善对失声症的认识.
- 与富有同情心的提供者联系为家庭提供了显著的缓解.
- 由于缺乏标准化的治疗方法,对于寻求缓解症状的个人来说,需要漫长的试错过程.
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