开发一个创伤信息的社交媒体活动,以传播子宫内膜异位症特定的定性基于艺术的研究结果:教程
Kerry Marshall1,2, Hargun Dhillon3, A Fuchsia Howard1,2
1School of Nursing, University of British Columbia, Gateway Health Building, 5955 University Blvd., Vancouver, BC, V6T 1Z1, Canada, 1 604-822-4372.
Journal of medical Internet research
|January 27, 2026
概括
一个关于创伤的社交媒体宣传活动提高了加拿大的亚洲女性对子宫内膜异位症的认识. 该EndoPhoto研究活动优先考虑了安全,赋权和文化敏感性,在子宫内膜异位症宣传月期间实现了显著的影响力.
科学领域:
- 公共卫生 公共卫生
- 社交媒体活动 社交媒体活动
- 患者倡导 患者倡导
背景情况:
- 创伤知情护理在敏感的健康环境中提高了患者的幸福感,例如性和生殖健康.
- 子宫内膜异位症影响10%的生育年龄妇女,导致显著的骨盆疼痛,需要敏感的患者沟通.
- 以前的研究强调了对子宫内膜异位症护理的文化敏感方法的必要性,特别是在边缘化社区.
研究的目的:
- 在社交媒体活动中描述创伤知情原则的适应和实施.
- 提高加拿大的亚洲妇女对子宫内膜异位症的认识和理解.
- 分享来自EndoPhoto研究的研究结果,这些研究结果是关于COVID-19大流行期间子宫内膜异位症的体验.
主要方法:
- 开发并实施了一个社交媒体活动,使用五个适应创伤信息的原则:支持,可信度,安全,赋权和文化敏感性.
- 与患有子宫内膜异位症的患者合作伙伴共同设计的竞选内容.
- 在子宫内膜异位症意识月期间在Instagram和Pinterest上推出了这项活动,重点关注亚洲女性的真实经历.
主要成果:
- 社交媒体活动在2025年3月实现了超过850万次的总量印象.
- 在Instagram上,参与率为6.23%,在Pinterest上为1.4%.
- 该活动成功地传播了来自EndoPhoto研究的关于子宫内膜异位症经验的研究结果.
结论:
- 以创伤为基础的社交媒体活动可以有效地提高人们对 endometriosis 等复杂健康状况的认识和理解.
- 与患者合作伙伴共同设计和遵守创伤知情原则对于敏感和有影响力的健康沟通至关重要.
- 该活动展示了社交媒体在分享研究和赋权患者在生殖健康方面的声音方面的潜力.
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