澳大利亚子宫内膜异位症CALD妇女的信息搜索行为:一种定性研究
Deniz Senyel1, James H Boyd1, Melissa Graham1
1Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne 3086, Australia.
International journal of environmental research and public health
|January 28, 2026
概括
在文化和语言上不同,患有子宫内膜异位症的妇女从专业人士,在线来源和同龄人那里寻求健康信息. 改善获得量身定制的,基于证据的子宫内膜异位症信息对这些妇女至关重要.
科学领域:
- 妇女健康 妇女健康
- 公共卫生 公共卫生
- 卫生沟通健康沟通
背景情况:
- 子宫内膜异位症影响着许多澳大利亚妇女,构成了重大的公共卫生挑战.
- 获得健康信息对于明智决策和生活质量至关重要.
- 文化和语言多样性 (CALD) 妇女面临与子宫内膜异位症有关的独特的沟通和健康素养障碍.
研究的目的:
- 探索CALD女性患有子宫内膜异位症的信息搜索行为和经验.
- 了解文化背景,禁忌和耻辱如何影响信息获取.
- 确定在CALD妇女中首选和使用的子宫内膜异位症信息来源.
主要方法:
- 半结构面试对11名被诊断患有子宫内膜异位症的CALD妇女进行了半结构面试.
- 参与者通过社交媒体平台使用方便和雪球采样来招募.
- 专题分析用于分析采访数据,确定关键模式和主题.
主要成果:
- 虽然并不总是将文化视为直接影响,但参与者指出,社会禁忌和污名影响信息搜索.
- 主要信息来源包括医疗保健专业人员,在线资源以及其他患有子宫内膜异位症的女性的同行支持.
- 医疗保健专业人员被重视为个性化的建议,但有时缺乏全面的子宫内膜异位症知识.
- 虽然在线信息丰富,但通常是压倒性的,难以导航.
- 同行获得的信息提供了实际的见解和验证,但其适用性各不相同.
结论:
- 需要为患有子宫内膜异位症的CALD妇女改善信息通路.
- 提高医疗保健提供者提供的患者教育是必不可少的.
- 建议开发适合CALD妇女的可访问,基于证据的在线资源.
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