开发和验证韩国版本的雷特综合征行为问卷
You Gyoung Yi1, Seoyon Yang1, Ga Hye Kim2
1Department of Rehabilitation Medicine, Ewha Womans University Seoul Hospital, College of Medicine, Ewha Womans University, Seoul 07804, Republic of Korea.
Children (Basel, Switzerland)
|January 28, 2026
概括
韩国雷特综合征行为问卷 (K-RSBQ) 是评估雷特综合征 (RTT) 患者行为和神经特征的可靠工具. 它显示了韩国主要护理人员的良好的内部一致性和测试-重新测试可靠性.
科学领域:
- 神经科学是一个神经科学.
- 发展心理学 发展心理学
- 临床心理学 临床心理学
背景情况:
- 雷特综合征 (RTT) 是一种罕见的神经发育障碍.
- 行为和神经评估对于RTT管理至关重要.
- 没有得到验证的韩国版本的雷特综合征行为问卷 (RSBQ).
研究的目的:
- 为了将RSBQ翻译成韩语 (K-RSBQ).
- 在韩国RTT群体中评估K-RSBQ的心理测量特性.
- 为韩国RTT建立一个文化适应的评估工具.
主要方法:
- 标准化翻译和反向翻译RSBQ.
- 精炼的德尔菲过程.
- 在线调查对RTT患者的主要护理人员进行.
- 心理测量评估包括内部一致性,测试重复测试可靠性,以及与儿童自闭症评分表 (CARS) 的相关性.
主要成果:
- K-RSBQ显示出高的内部一致性 (克朗巴赫的α=0.912).
- 对于总分数 (加权 κ = 0.594) 观察到适度的测试重复测试可靠性.
- 初步证据支持与CARS相关的构造有效性,尽管评审者之间的可靠性通常很低.
结论:
- K-RSBQ是一种可行的,文化适应的工具,用于评估韩国环境中的RTT行为特征.
- 它显示了可接受的内部一致性和对主要护理人员的测试-重新测试可靠性.
- 建议进行进一步的验证研究,以解决标准验证和评审者间协议的局限性.
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