在儿科息治疗中了解母亲在照顾严重认知障碍儿童中的作用:一项定性试点研究
Anna Santini1, Anna Marinetto2,3, Danai Papadatou4
1Pediatric Pain and Palliative Care Service, Department of Women's and Children's Health, University Hospital, 35128 Padua, Italy.
Children (Basel, Switzerland)
|January 28, 2026
概括
在儿科息护理 (PPC) 中照顾儿童的母亲通过体现的联系和象征性的意义创造来发展独特的母亲身份. 了解这些主观经验对于提供个性化,支持性护理至关重要.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 母亲身份研究 母亲身份研究
- 儿童心理学 儿童心理学
背景情况:
- 在儿科息护理 (PPC) 中的母性对患有严重认知障碍儿童的母亲来说具有独特的挑战.
- 传统的母亲身份框架对于缺乏口头沟通和典型的发展里程碑的环境是不够的.
- 在PPC中,母亲的主观和象征性维度需要进一步探索.
研究的目的:
- 探索母亲如何在PPC中构建和解释她们的母性身份,用于严重认知障碍儿童.
- 在这个特定的背景下,了解母亲身份的主观和象征性方面.
- 突出这些身份过程对医疗保健专业人员的临床相关性.
主要方法:
- 意大利PPC中9名儿童母亲的定性研究.
- 三个在线聚焦小组进行了,总共270分钟.
- 由ATLAS.ti软件支持的反思性主题分析,成员反思用于验证.
主要成果:
- 母亲形成了绕的母子关系,其特点是体现的调和和专业的解释能力.
- 母亲角色是通过情感劳动,身份谈判,牺牲和同行支持来构建的.
- 儿童被认为是独一无二的,具有象征意义的生物,影响了母亲的身份构建.
- 参与寻找意义的母亲,在存在和关系视角中重新定义他们的照顾.
结论:
- 在PPC中,母亲的照顾涉及到超越传统的母性定义的情感,关系和象征性维度.
- 了解这些身份动态可以增强临床实践,改善沟通和治疗联盟.
- 需要量身定制的干预措施和进一步的研究来支持医疗保健专业人员和跨学科的护理.
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