脑儿童父母感知生活质量的多维分析:一个横截面研究
Javier López-Ruiz1, María-José Giménez1, Marina Castel-Sánchez1
1Universidad Europea de Madrid, Faculty of Medicine, Health and Sports, Department of Physiotherapy, Campus de Villaviciosa, Calle Tajo s/n, 28670 Villaviciosa de Odón, Madrid, Spain.
Children (Basel, Switzerland)
|January 28, 2026
概括
脑 (CP) 儿童的父母感知的生活质量 (QoL) 与功能能力有关. 干预措施应侧重于社会参与,并将治疗强度与改善福祉的家庭需求相平衡.
科学领域:
- 儿科 儿科 儿科
- 康复医学 康复医学 康复医学
- 生活质量研究 研究 生命质量研究
背景情况:
- 从父母的角度来看,脑 (CP) 显著影响孩子的生活质量 (QoL).
- 对于有针对性的干预措施来说,了解影响家长感知的QOL的因素至关重要.
研究的目的:
- 分析 CP 儿童的父母感知的 QoL.
- 通过使用国际功能,残疾和健康分类 (ICF) 框架,研究社会人口统计学/临床因素和QoL之间的关系.
主要方法:
- 对95名患有脑膜炎的儿童 (5-19岁) 进行横截面研究.
- 关于社会人口统计和临床数据的家长问卷.
- 使用脑麻生活质量 (CP-QoL) 和儿科残疾库存-计算机自适应测试 (PEDI-CAT) 的评估.
- 功能分类包括总运动功能测量 (GMFM-88,GMFCS),手动能力分类系统 (MACS),饮食能力分类系统 (EDACS) 和通信功能分类系统 (CFCS).
主要成果:
- 当孩子避免了AFOs,肉毒毒素和最近住院治疗时,父母感知的QOL更高.
- 在参加物理治疗>2小时/周的儿童中,QoL较低.
- "对功能感受"领域与功能变量 (GMFM-88,PEDI-CAT领域,GMFCS,MACS,EDACS,CFCS) 有中等的相关性.
- 回归分析确定GMFM-88,PEDI-CAT活动和PEDI-CAT社会/认知作为QoL的关键预测因素,PEDI-CAT活动是最强的 (R2 = 0.619,p < 0.001).
结论:
- 患有脑膜炎的儿童的父母感知到的QOL受到功能表现的显著影响,特别是手动能力和活动水平.
- 干预措施应优先考虑社会参与,并仔细管理治疗强度,以避免压倒家庭.
- 与日常生活平衡治疗需求是提高整体家庭福祉和儿童生活质量的关键.
关键词:
脑性麻 脑性麻 是一种孩子们的孩子们的孩子们的孩子们.身体残疾和健康问题与健康相关的生活质量.功能国际分类的功能国际分类.父母 父母 父母 父母 父母 父母 父母 父母 父母 父母 父母 父母 父母更多相关视频
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